A Personal Bit
Letter to New Sufferers
Diagnosis & Symptoms
What Causes Chronic Fatigue ?
What Hope ?
Books & CD
I've been following improved regimes since the start of February 2003, with various adjustments to aid the management of the illness. They are not a cure, but have had interesting results - I am now able to maintain (low) activity levels, which earlier had become impossible.
It's all about manangement, of which we've all heard much, but introduces the strange concept that the pain is not necessarily associated with the activity.
I've used it in association with prescription pain management and an attempt to improve sleep - I feel sleep is the key to improvements.
This regular activity was proposed by considering the illness in a new light - that the pain and tiredness is not an indication of fitness. That is, that some activity is possible even though pain already exists, and that there is a baseline of activity possible which doesn't make things worse.
One way of considering this is that the illness causes the body to be "over sensitive", so that pain is felt where normally it would not, though activity above the (low) baseline still causes fatigue.
One thing to point out is that this is physical activity. Mental activty seems to be a separate issue - the increased physical activity does not effect the baseline of mental activity, one way or the other.
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